Public Health England (PHE) has published the latest annual report of the UK National Screening Committee’s recommendations on whether to screen for conditions based on reviews of the best quality evidence. The report summarises the recommendations made on 16 conditions between 1 April 2017 and 31 March 2018.
These include the recommendation that screening for severe combined immunodeficiency (SCID) as part of the newborn blood spot programme should be evaluated in the NHS because evidence shows it is likely to increase the number of affected babies who would survive before and after a bone marrow transplant.
An updated version of the leaflet Congenital diaphragmatic hernia (CDH): information for parents has been published. This blog from The NHS Fetal Anomaly Screening Programme (FASP) explains more about the updated leaflet as well as its work with stakeholders to update parent information leaflets about the 11 conditions they screen for during a mid-pregnancy ultrasound scan.
This PHE blog explains how all women should receive the results of their antenatal screening tests regardless of the outcome of their pregnancy. This includes women who miscarry or terminate their pregnancy after they have been screened. The NHS Infectious Diseases in Pregnancy Screening Programme has developed a template letter for trusts to use for sending screening results to women who miscarry or choose to end the pregnancy.
Read the blog post with links to letter template here
Public Health England has updated Infectious diseases in pregnancy screening standards. These revised national standards for the NHS infectious diseases in pregnancy standards programme (IDPS). The IDPS supports health professionals and commissioners in providing a high quality screening programme.
Full details available from Public Health England here
Do you work with women with learning disabilities? Can you help PHE with their online survey? Publishing easy guides is one way PHE aims to reduce inequalities, by allowing everybody to get the information they need to make informed decisions about screening.
With support from PHE Screening, NHS England is beginning an evaluation of how information on antenatal and newborn screening is provided to women with learning disabilities in London. They would like feedback on the ‘Screening tests for you and your baby: easy guides’ from anyone involved in the antenatal and newborn screening pathway. Please complete the short survey which closes on 1 March 2018.
More information and the survey link is available here
Newborn blood spot screening failsafe solution (NBSFS) is a new IT system that minimises the risk of babies missing, or having delayed, newborn blood spot (NBS) screening. This guide from Public Health England explains how to use the NBSFS.
Download a quick reference guide, training guides and forms here
This is a report on NHS-funded maternity services in England for March 2017, using data submitted to the Maternity Services Data Set (MSDS). The MSDS has been developed to help achieve better outcomes of care for mothers, babies and children. The MSDS is a patient-level ‘secondary uses’ data set that re-uses clinical and operational data for purposes other than direct patient care, such as commissioning, clinical audit. It captures key information at each stage of the maternity service care pathway in NHS-funded maternity services, such as those provided by GP practices and hospitals. The data collected include mother’s demographics, booking appointments, admissions and re-admissions, screening tests, labour and delivery along with baby’s demographics, diagnoses and screening tests.